It was clear from my reader survey, that one of the things you want most, is a glimpse into our every day life. While sometimes it seems too uninteresting to share, the overwhelming response was that you love real, normal, life. I do my best to share the good, the bad, and the ugly, but I thought it might be even more fun to share a regular peek into an average day around our home (or elsewhere, depending on the day). Welcome to January 10th.
Tuesday was pretty atypical. Sophie had an appointment at the Children’s Hospital GI Clinic at 2 o’clock in the afternoon and while that’s blocks from my office, it’s an hour from home. We kept her out of school and she made the trip with me. Armed with a fully charged iPad and plenty of art supplies, she kept herself busy while I ran all over the office most of the morning. We took a six block walk to grab lunch in the middle of the day and it was breezy! The girls don’t spend much time downtown, so she fascinated by pedestrian walkway signs, hot pink commuter buses and policemen on bicycles. The donut window was closed or we would have grabbed a gluten free treat on our way back. Her clinic appointment was short and painless — the most exciting parts were a glass walkway and an overfilled parking garage. I needed to work several more hours after, so she ate macaroni and cheese in the office “cafeteria” and fell asleep in my guest chair. I managed to pick up kielbasa at Sprouts, while carrying her, and she never even woke up. Three cheers for daddies who carry little people to bed. Ella danced until 8:15 and I caught her in the kitchen making pancakes at almost ten. She joked that despite our National Championship fail the night before, we were both sporting Alabama pjs — there are no fair weather fans in this house.
Update on Sophie: The clinic appointment was great. We loved the new doctor and his staff, there was no blood work this time <insert praise hands emoji>, and we were only there an hour and a half. We’re still waiting on our repeat celiac test, but the results should be available next week. He cautioned me not to be too optimistic — he has a strong feeling she is just sensitive to gluten with some unexplained symptoms that we’ll be managing on our own. For now, we’re discontinuing all medication <another happy face emoji> and continuing a gluten free diet. We will be following up after our vacation next month and testing her for a true lactose intolerance. That test is non-invasive and will open up an entirely new food group if she can tolerate it. Because she is super sensitive to change, we aren’t telling her about the removal of her prescriptions. She usually takes them in a bowl of applesauce for breakfast, so we’ll be eating that sans meds for a few more days to get a better picture of how it affects her before she even realizes it. Fingers crossed!
